“You eat so well!”
“You crush it in the gym!”
“You’re young and look so healthy though!”
All comments that have been said to me — and yet, here I am, about to turn 27 and feeling like an 80 year old whose life has been ripped away from her far too soon with every new medical discovery and diagnosis I receive.
Yesterday, I had my second appointment with Dr. Nicole. If you’ve been keeping up, you’ll remember her to be my new functional doctor. Since my first visit with her, I’ve finished my round of Xifaxan prescribed by my no-longer gastro for the SIBO (and no, I’m not feeling magically better as I had wished) and have also completed more bloodwork – something pretty routine to me by this point.
At my appointment yesterday, we went over the new bloodwork Dr. Nicole had requested, and boy, it was quite the overwhelming experience. I’ll be honest, my happy-go-lucky, can-do attitude broke a little yesterday.
Dr. Nicole, is great – let’s not get that confused. She sat with me and talked through all the findings, and summarized everything into her plan of action very clearly. She answered all my questions, and is just a great human overall. But the information she shared was less than appealing, and although knowledge is power, yesterday, knowledge just felt like a ton of bricks.
Picture this: A movie moment — cue the dramatic and triumphant music (you know the one), a track-star about to win the race, smiling ear to ear, he makes his way toward the finish line in slow motion. The end is in sight, the gold so close he can taste it, and out of nowhere, he starts to trip and his smile fades slowly. Zoom into his ankles turning this way and that way, his knees knocking, now back up to his face that has now gone from a look of victory to full-on defeat before cutting back to real time with the winner-to-be face-planted on the track with a furry of feet trampling him to take his place for first, second and third as he just lays there, defeated.
That is how I felt after my appointment yesterday. When I had the SIBO diagnosis, I felt like I was on my way to victory – FINALLY! Something to blame all my problems on, and medication to potentially fix it! However, the antibiotics haven’t left me feeling any better (deep-down I knew that 2 weeks wouldn’t truly make a difference). But today, I found out that in addition to the SIBO, I have candida, and have also been living with 3 chronic viruses in my system. THREE.
Epstein Barr Virus (two strands of it, actually), some other mono-causing virus, and herpes (no, not that kind). And before you ask, NO I AM NOT CONTAGIOUS.
Am I totally shocked? I mean, not really. Yes in the sense that these viruses are still in my system, but I had mono in college my sophomore year (2012), and since then, have struggled a lot with my health.
In addition to the viruses, I also found a few different things were off with my autoimmune response, candida, some vitamin levels, thyroid levels, etc.
Basically, I’m the sickest healthy person you know. What I mean by that is I do everything right. I do my best to eat well, I exercise regularly, and just generally take good care of myself, and it’s not enough. And isn’t that frustrating? It is. I really can’t even put into words at the moment just how draining it feels.
Dr. Nicole has a protocol for me which I’ll chat about in a different post, but for now all I’ll say is this: it’s a lot of supplements that of course insurance won’t cover, so of course I’m starting to stress about money. But stress isn’t good. How do I not stress? NOW I’M STRESSED ABOUT STRESSING. (Do you see how for a type A personality, this can be a black hole?)
Anyway, the short of it is this: start the supplement protocol, complete the stool test (which cost me $500 – yikes), follow a candida diet, and follow-up in 5 weeks when the aforementioned test results are in.
I know this post was a little more negatively toned than what I typically convey, but I’m having a moment. I feel like I am wasting the prime years of my life just trying to heal myself. At 27, I should be going out and enjoying life and spending my money on fun experiences and meeting new people — not worrying about spending my money on supplements and how much sugar and carbs I’m eating and if I’m doing everything to lower my viral load and kill yeast and bacteria… UGH. Somedays I just feel like an old shell, and it’s hard, because that is NOT me. I used to be, and want to be, a very full person. But it’s hard some days, and that’s just the truth of it.
With my birthday approaching in 2 weeks (May 11th if ya wanna set a calendar reminder!), I feel so conflicted. I know I’ll want to celebrate, but I’ll feel guilty knowing it won’t be good for my body – but am I supposed to just not celebrate? WHERE IS THE FUN IN THAT?!
Life isn’t fair, but I’m trying to remember that there is a lesson in all that we experience. What is meant for you will find you when it’s right for you.
Look out for my next post on my protocol and a few more deep-dive details (if you’re following me for specific health interests!), but until next time…